Tyler, Age 4: Rare Heart Condition

Tyler is all giggles! She appears to laugh all the time, despite a serious and rare heart condition.

While she was still pregnant, Tyler's mom found out during a routine ultrasound that her baby had a heart that was not forming properly. They were referred to the Center for Advanced Fetal Care at the University of Maryland Medical Center, where the team told the family that Tyler had hypoplastic right heart syndrome and pulmonary atresia, which means that the right side of her heart did not develop normally.

"I loved that all the doctors got to know Tyler even before she was born," explains Tyler's mom, Rhonda. She felt like the fetal experts, the pediatric cardiologists and the pediatric cardiac surgeon were all invested in making sure this little girl had a successful outcome.

"Without intervention after she was born, Tyler would not have had enough blood flow to her lungs and would not have survived," says Alicia Chaves, MD, of pediatric cardiology who is one member of the much bigger team that cares for Tyler.

"Be Proud of Those Scars"

In just four years of life, Tyler has undergone three major open heart surgeries.

Rhonda is not shy about sharing Tyler's story because she says, "You would never know anything was wrong with her just by looking at her."

"I tell her you be proud of those scars. They are part of your story," says Rhonda.

And still Tyler giggles! And her family smiles too because she is here today, doing very well and thinking about a career as a doctor so she can listen to people's hearts with a stethoscope.

Are you looking for a pediatric specialist? Call the UM Children's Hospital at 410-328-5887.