Providing Support for Families of Babies with a Congenital Heart Disease
I found out about my daughter's CHD diagnosis five months into my pregnancy. I was in disbelief because I had never heard of congenital heart defects. The feeling of thinking "have I done something wrong" or "will my baby be okay" is a constant thought in the mind of a mom expecting a child who's born with a uniquely formed heart. Shortly after my diagnosis I was referred to the center for advanced fetal care at the University of Maryland Medical Center. I had frequent visits throughout my pregnancy to monitor my daughter's growth and development.
Dr. Shifa Turan was very patient and understanding during my journey as well as other medical staff. The experience was freighting but I felt a sense of comfort each time I was able to see my little angel kicking and moving via ultrasound.
Today my daughter, Faith, is a busy 3 year old living without limitations. After becoming comfortable with my daughter's CHD, I started a non-profit foundation to promote HOPE after the diagnosis, spread CHD awareness and support families caring for children with congenital heart defects. I believe in being connected by the heart. During my journey, I had the support of my family, friends and an amazing medial staff at the University of Maryland Medical Center, but I was missing a very important piece which is another heart mom that would understand exactly how I was feeling.
My foundation A Heart's Journey has a vision based on connecting to other Heart moms, dads and families to be supportive through our Heart Journeys. Please visit our website aheartsjourneymd.org to become connected by the heart.
~ Feren Taylor
More Information and Appointments
For additional information, or to make an appointment, please contact the center for Advanced Fetal Care at 410-328-3865.